February 10, 2025
There are so many hard parts about living with a brain injury. It would be impossible to tell you what THE hardest part is but I will tell you about one of the hardest parts.
Life is no longer willy-nilly. Long gone are the days of working, then exercising, then going out to dinner with friends. I get one of those things. Two if I’m having a particularly good day. But never all three. There are no more last minute trips to see family or go to the ocean for the day. I have to make sure that I don’t double-book myself (and in this case I do not mean two events at the same time, I mean two events on the same day). I have to make sure to leave days free before events to rest up and leave days free after events to recover. Knowing how long to rest up and how long to recover is a fine art. Successfully scheduling my limited work schedule, adult chores, time with friends/family, exercise, and never ending doctors appointments, with rest and recovery days built in, has become a full-time job. Raise your hand if your Google calendar has days that say “do not schedule anything for this day”. *raises hand* It’s exhausting and I’m so tired of it. I miss the carefree days of yore.
I guess it’s a short Confession tonight. I don’t even have the energy to type all I want to because I did two things today. I miss it being easier.

thank you for your message, you wrote exactly how I have felt for 30 years. Happy Valentine’s Day to you and thank you for your message. It brought tears to my eyes, and a little bit of joy to my heart, knowing that somebody else understands how tough life is with the TBI!
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Thank you for your kind message! I’m sorry that you’re in a position to understand what I’m writing. This life is hard.
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